News

Inclusive Choir Finds Voice in Lockdown

BBC

News item by the BBC about how the inclusive choir Soundabout has managed to keep singing during lockdown.

Eleven Organisations Write to CQC

Leigh Day

Eleven organisations including Rightful Lives have jointly written to the Care Quality Commission (CQC) to raise their concerns about the decision to stop carrying out inspections of care homes and hospitals.

Jane Philpott on life inside the care home where 95 per cent of the residents have covid-19

National Post

An article from the Canadian National Post - "...Forty of the 42 residents at Participation House have tested positive for COVID-19. Six have died. On the day Philpott arrived, the centre was down to just 10 staffers from a full cohort of over 100. “It was sort of in this survival phase. It was in survival mode,” she said. 'I saw people who were really worried amongst the staff. I saw residents who were really worried. You could see it in their eyes.'... "

Government Relaxes SEN Laws

SNJ

Excellent article from Special Needs Journal on the government's "relaxation" of children and young people's right to have services secured and arranged as part of their Education Health and Care Plans.

Chat for Care Livestream

CasCaid

If you rely on your council for care/support, its adoption of the Care Act easements will inevitably affect the legal duties that your services depend upon, in what may be unpredictable times. Join Cascaidr live at 7pm on Thurs 30/04/2020

This isn't time to give in

Alexis Quinn

“This isn’t the time to give in” – My experience of the COVID-19 lock-down by Alexis Quinn

Unprecedented number of DNR orders for learning disabilities patients

HSJ

A disturbing article in the Health Service Journal on the "Unprecedented number of DNR orders for learning disabilities patients".

Grab and Go Form

NHS

The NHS has designed a Grab and Go Form for hospital staff to use if an autistic person or person with a learning disability goes into hospital with Covid-19. It is not intended to replace a hospital passport but...

COVID-19 Grab and Go Guide

NHS

The Grab and Go Guide Guidance Notes are designed to help people to complete the two page Grab and Go Guidance Form that hospital staff will use in-order to inform themselves about the needs of an autistic person or person with a learning disability.

Statement in Support of the Statement - Covid-19 and the rights of Disabled People

People First

People First and Change People have supported a group of people with learning difficulties or learning disabilities to write a statement in support of the statement published by Disability Rights UK "Covid 19 and the rights of disabled people"

Reasonable adjustments for people with intellectual disabilities during the Covid-19 pandemic

Irene Tuffrey-Wijne

Outstanding blog from Irene Tuffrey-Wijne on the importance of reasonable adjustments ..." When it comes to disadvantage in a pandemic, people with intellectual disabilities (or learning disabilities, as we say in the UK) top the charts, as they so often do. Many people with intellectual disabilities fit into so many of the DISADVANTAGE boxes (I know people who fit into all of them), it’s a miracle they keep going... "

Holding onto principles – the MCA and Covid-19

39 Essex

On April 16th 39 Essex Chambers gave a hugely over-subscribed webinar on the MCA and Covid-19.

Covid-19 action plan for adult social care

DHSC

Yesterday the government launched its Covid-19 action plan for adult social care - it's fair to say that it has had a mixed response.

Covid-19 and People with Intellectual Disability

Radiant

New guidance for practitioners from Radiant Research Consortium in Hertfordshire - Radiant have now published three different guides on treating people with an intellectual disability - some of it is emotionally difficult for people to read but it is very helpful so well done to Radiant for publishing these guides.

The Uncounted

Rightful Lives

A new video from Rightful Lives on the government's approach to the pandemic and what is happening in the community.

Masks for all ? The science says yes.

Trisha Greenhalgh

An article by Trisha Greenhalgh OBE and Jeremy Howard about why we should probably all be wearing face-masks.

NHS score tool to decide which patients receive critical care

FT

Financial Times article - "Doctors coping with the coming peak of the coronavirus outbreak will have to “score” thousands of patients to decide who is suitable for intensive care treatment using a Covid-19 decision tool developed for the National Health Service..."

Mortality associated with COVID-19 outbreaks in care homes - early international evidence

Adelina Comas-Herrera

"Data from 5 European countries suggest that care home residents have so far accounted for between 42% and 57% of all deaths related to COVID-19."

Coronavirus - Autistic support group 'told it needed DNR orders

BBC

"A GP surgery which said autistic adults should have plans to prevent them being resuscitated if they become critically ill has been criticised..."

Community Register of Learning Disability Deaths 1 March 2020 onwards

George Julian

"Please share this widely and repeatedly. @GeorgeJulian has set up a straightforward way for the deaths of people with learning disabilities to be marked and (if people wish) memorialised as we go through the #Covid19 pandemic. The blog makes it very clear why and how we need this" - Chris Hatton

Important Visitor Guidance

NHSE

NHS Guidance on who is still able to visit somebody in hospital. Includes people being able to support an autistic person or a person with a learning disability.

Disabled people can exercise more than once a day

GOV.UK

The government has recognised that people with learning disabilities and autistic people may need to exercise more than once a day away from their home if it is in line with their care plan.

I know my life will not be saved in this pandemic

Lucy Watts

BBC publishes an edited version of Lucy Watts' blog on Coronavirus

Legal guidance for mental health learning disability and autism

"This guidance concerns the impact of COVID-19 on the use of the Mental Health Act and supporting systems to safeguard the legal rights of people receiving mental health, learning disabilities and specialised commissioned mental health services..."

DNR Letter to NHS Providers

NHSE

Important clarification from NHSE regarding DNR letters and use of the Clinical Frailty scale:

Coronavirus - Care workers shocked by virus treatment guidance

BBC

BBC article on disturbing guidance issued by the Brighton and Hove Clinical Commissioning Group

Supporting Children and Adults

CBF

A timely publication from the Challenging Behaviour Foundation - "Supporting children and adults with severe learning disabilities at home during the Coronavirus epidemic".

Whose Life Counts

Sanchita Hosali

An article by Sanchita Hosali from the British Institute of Human Rights - The fight against Covid-19: Whose life counts?

Good Days and Bad Days During Lockdown

Another brilliant resource from Books Beyond Words - Helping people to deal with not being able to go out.

Care Act Easy Read

Dorset Advocacy

Dorset Advocacy have produced an excellent Easy Read Guide to the changes to the Care Act - It must be good because Steve Broach retweeted it.

JCHR - Call for Evidence

The Joint Committee on Human Right's Inquiry "The Government’s response to COVID-19: human rights implications" has issued a call for evidence.

Joint Statement on Advanced Care Planning

The British Medical Association (BMA),Care Provider Alliance (CPA),Care Quality Commission (CQC) and the Royal College of General Practice (RCGP) have issued a joint statement on advanced care planning.

Accessible Version of NHS Guidelines

A link to the accessible version of the NHS England clinical guidelines for learning disability and coronavirus that is for all healthcare staff across all specialities.

Guidance - Care Act Easements

DoHSC

Government guidance on the powers that Local Authorities now have not do the things they were supposed to be doing under the Care Act 2014

Social Distancing

BTM

Great GIF from BTM.org showing the importance of social media.

Doughty St Chambers on Emergency Powers

DSC

Emergency coronavirus powers and people lacking mental capacity

Keep Safe - New Website from Photosymbols

Photosymbols

Brilliant new website from Photosymbols providing easy read materials relating to the Coronavirus

Supporting each other through the Coronavirus

WeLDNurses

Twitter chat by WeLDNurses on Coronavirus 8-30pm Tuesday 31st March using the #WeLDNs hashtag

And Breathe

Sonia Antoniazzi

Some timely advice from Respond about the importance of looking after ourselves

Another Kind of Vulnerable

Mark Brown

It isn't just underlying health conditions that will make people with learning disabilities vulnerable to Covid-19. The way that things are done will also make a difference.

Clinical Guide - Management of patients with a learning disability, autism or both

NHS

The NHS has published speciality guides for the management of patients with Covid-19 including a "Clinical guide for front line staff to support the management of patients with a learning disability, autism or both during the coronavirus pandemic – relevant to all clinical specialities"

Beware of Covid-19 Scams

NTS

National Trading Standards is warning people to beware of - "Unscrupulous criminals are exploiting fears about COVID-19 to prey on members of the public, particularly older and vulnerable people who are isolated from family and friends. National Trading Standards is warning people to remain vigilant following a rise in coronavirus-related scams that seek to benefit from the public’s concern and uncertainty over COVID-19."

NHS Publishes Vital Guidance on Managing Capacity in Inpatient MH Hospitals

(The NHS has just published its guidance and a covering letter on Managing capacity and demand within inpatient and community mental health, learning disabilities and autism services for all ages) "This guidance has been produced by the national NHS England and NHS Improvement Mental Health, Learning Disabilities and Autism and Specialised Commissioning COVID-19 Response Cell. It provides information and guidance for providers and their clinical and non-clinical teams who are planning for how best to manage their capacity across inpatient and community services, and should support contingency planning, already underway, for a range of resourceconstrained scenarios. It will be updated as required... "

Electric Umbrella - Challenging Perceptions

Electric Umbrella

Live online events for people with learning disabilities

Government launches Coronavirus Information Service on WhatsApp

Cabinet Office

"The new free to use service aims to provide official, trustworthy and timely information and advice about coronavirus (COVID-19), and will further reduce the burden on NHS services. This will help combat the spread of coronavirus misinformation in the UK, as well as helping ensure people stay home, protect the NHS and save lives."

Human Right Watch - UK COVID-19 Law Puts Rights of People with Disabilities at Risk

HRW

Human Rights Watch - "UK’s Coronavirus Act, which becomes law today, has serious implications for the rights of people with disabilities and older people, and its implementation needs to be carefully monitored to protect people’s rights to health care, education, and freedom, Human Rights Watch, the UK National Survivor User Network (NSUN), and international human rights expert Gerard Quinn, said today."

NICE-U-Turn

Independent

(An article by Shaun Lintern of the Independent on the U Turn by NICE on their critical care guidance for the NHS) 'Many autistic and learning disabled people and their families have believed that they are treated as less than human, and it certainly felt as if the guidance was confirming just that'...

COVID-19 Protecting people in places of custody and detention

Inquest

"INQUEST has today (23/03/2020) published a new briefing on COVID-19: Protecting people in places of custody and detention. The briefing sets out our immediate concerns around the pandemic, focusing on our areas of expertise. We highlight the government’s human rights obligations and the need to protect people in places of custody and detention..."

Accessing Care Webinar

Upcoming Webinar - Accessing Care during the Coronavirus Crisis with @SteveBroach 30/03 @ 11am-12pm. Focused on the onset of new emergency #coronavirus #legislation, “The #CoronavirusBillUK". Organised by @incontrolorg